Latest update

I heard from two of the doctors in Cincinnati today. There are four doctors working on my case. All four of them have agreed that I do have Hypereosinophilic Syndrome (HES). The biopsies of my upper and lower GI's have shown significant infiltrations of eosinophilis in my stomach, esophagas and intestines. The colon was fine. There was evidence of ulcers and inflammation caused by the eosinophils in all those areas as well.
My heart looks great! I do have a minor heart murmur, but they don't think my disorder has caused this so that is a HUGE praise!
I'm still continuing to wheeze and have shortness of breath. One doctor thinks this could be caused by inflammation in my esophagas, the other doctor thinks that it's reactive airway caused by the eosinophils in my lungs (this is what I think too). The only way to know for sure is to do a lung biopsy and I don't think we'll be doing that.
So, what does all this mean? What course of treament will I take?
I'll try to summerize what I've been told and add today's update to that....

HES is as close to Leukemia as you can get. There are 3 types of HES. I will have one more blood test to determine what type I have. I'll have the blood drawn here and then sent to a lab that specializes in looking at chromosones/genes/cells. There are different treatments for each type. I'll have some kind of chemotherapy for treatment (most likely Hydrea or Gleevac). I will stress that HES is NOT curable. It does NOT go into remission. I will ALWAYS have to take some form of medicine (chemo's and steroids) for the rest of my earthly life (that is if the Lord chooses to not heal me). I'll start treatment as soon as the blood test determines the type that I have...those results will take another 2-4 weeks.
They're also trying to decide what to do about my wheezing. Right now I'm on inhalers for that. I should know more on that in a few weeks too.
In the meantime, my doctor wants me weaned completely off of the prednisone that I've been on for 5 years! Yay! I can't tell you all how happy that makes me! : )

Well, that's it. When I find out more in a few weeks I'll be sure to let you all know.
Thanks so much for keeping me and Brian lifted up in prayer. I was really stressed about this a few weeks ago, but the Lord has washed me in His peace and I'm so thankful for that!

Here's some HES info. links:

http://www.aaaai.org/patients/gallery/hypereosinophilic_syndrome.asp
http://www.apfed.org/hes.htm
http://emedicine.medscape.com/article/202030-overview
http://hypereosinophilia.info/FAQs.htm
http://www.cincinnatichildrens.org/svc/alpha/e/eosinophilic/about/default.htm